Excerpt from "All of Us Needs All of You," posted on NIH Director's Blog, May 7, 2018.
I’ve got some exciting news to share with you: as of May 6, 2018, NIH’s All of Us Research Program is open to everyone living in the United States, age 18 and older. That means that you, along with your family and friends, can join with 1 million or more Americans from all walks of life to create an unprecedented research resource that will speed biomedical breakthroughs and transform medicine.
To launch this historic undertaking, All of Us yesterday held community events at seven sites across the nation, from Alabama to Washington state. I took part in an inspiring gathering at the Abyssinian Baptist Church in New York’s Harlem neighborhood, where I listened to community members talk about how important it is for everyone to be able to take part in this research. I shared information on how All of Us will help researchers devise new ways of improving the health of everyone in this great nation.
Today, much of our medical care is “one-size-fits-all,” not tailored to the specific needs of the individual patient. If we are to make the biomedical breakthroughs necessary to realize the full promise of precision medicine, researchers need a lot more data that takes into account individual differences in lifestyle, environment, and biology. Such data will be hard to assemble unless lots of people like you come together through the All of Us program and volunteer to share information about their health, habits, and what it’s like where they live.
To create the All of Us research resource, participants will provide health information over time by completing surveys, sharing their health records, providing blood and urine samples, and perhaps even by putting on wearable sensors. All of these activities will involve the most advanced security available to protect everyone’s data and ensure everyone’s privacy.
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